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DiscussionJust diagnosed with Glomus Jugulare Paraganglioma Tumor: Advice?
Brain Tumor | Last Active: Feb 20, 2022 | Replies (6)Comment receiving replies
Replies to "I have a brain tumor a paraganglioma, that causes me to be nauseous and dizzy. How..."
Welcome to the Brain Tumor group, Saylor. What a journey you've had - four years to get the diagnosis of Glomus Jugulare Paraganglioma Tumor. I'm inviting fellow members @jls77 @kfs @mrruttinger1, who also have experience with this type of tumor.
You mentioned that you are at Mayo Clinic now. Is this your first time at Mayo? What care plan has been suggested? Were you able to talk to them about pain management and controlling the nausea long-term?