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Is anyone using Rytary?

Parkinson's Disease | Last Active: Oct 15, 2023 | Replies (82)

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@rossellini

I take Rytary for dystonia and I've been on it for at least 6 years. When I was first prescribed Rytary I was given 36.25mg/145mg and took 3 capsules 3 times a day but I had moderate to severe dyskinesia from it. Over the years the neurologist lowered the intake and even changed the dose to try to limit the dyskinesia until he found the right amount. Rytary helps my dystonia quite well and for me taking 1 capsule of the 36.25mg/145mg three times a day helps my movement disorder quite a bit. I have very few side effects from the medicine.

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Replies to "I take Rytary for dystonia and I've been on it for at least 6 years. When..."

Hello @rossellini and welcome to Mayo Clinic Connet. I so appreciate you adding to our discussion on Rytary. It sounds like you and your doctor found a dosage that works quite well for you. Congratulations on persisting in this way and working with your doctor.

As this is your first post on Mayo Connect, I hope that you will post a little more about your journey with dystonia. Please share as you are comfortable doing so.

I look forward to getting to know you better. Have you also had a diagnosis of Parkinson's? Do you see a movement disorder specialist?