Hello @tatteesmom3 and welcome to Mayo Clinic Connect. I can certainly understand that you would want to post with others about this. When I had my first NET in 2003, there weren't very many discussion groups about this rare type of cancer. It is so very helpful now that there are people talking about this and sharing it with others.

We have some other members who have dealt with NETs in the lungs. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/

Mayo Clinic also has an online support group for people with NETs that you are free to join. They meet on the first Thursday of each month from 5:30 to 7 p.m. EST. People with NETs from all over the country join in this meeting. Every other month there is a guest speaker, a medical professional who speaks about NETs and can help answer questions.

Are you currently seeing a NET specialist or a general oncologist? As NETs are rare, it is a good idea to be seen by a NETs specialist for a consultation. Many NET specialists will see patients for an initial consult and then work with their local oncologists for treatment.

If you care to share more, what symptoms led to your diagnosis? Have you had a Gallium scan?