Connect
← Return to Erosive Osteoarthritis
Discussion
Comment receiving replies
@sueinmn, and all...that was a tough recovery, sounds like, but you got really good results. I wish I'd had your doctor when I was deteriorating and losing the use of my thumbs/hands. I can type still, some days easier than others, but man oh man if I use my hands in a different way or too much or squeeze or whatever, I pay for several days in pain. Right now the wrists are waking me up at night. The 1:1 MM lotion helps for a while. Now, my feet. especially the right foot, are hurting much more. Hurts to walk, sit, aching and pain.
Have you taken glucosamine/chondroitin, sp?, to help replace or renew or whatever the joints? It helped my dog before her death, a lot. I took it years ago but not recently as I'm working to be very careful with supplements. Wonder if I should add them again. Also, did you ever take Plaquenil? Since I have Sarcoid and Vasculitis-autoimmune diseases, wonder if it would be helpful for me. Do you have any info on that drug for this? I'm ckg out the online info re side effects and such, but you and @johnbishop are my go-to folks about this.
Thanks in advance for whatever you can share.
Blessings, Sue and Happy New Year! elizabeth
Replies to "@sueinmn, and all...that was a tough recovery, sounds like, but you got really good results. I..."
Elizabeth - I find relief from my thumb and wrist pain from wearing adjustable, supportive neoprene braces for many activities, and for sleeping. They need not be overly tight, just enough to offer gentle support. The pictures below are 2 types I use - I find the Futuro one especially easy to wear, but the other one also offers a bit of warmth for colder weather.
As for pain relief, I find that a pain rub containing an NSAID, like Voltaren Gel to work well. Plaquinel does work for some as John posted, but my own body had too many quinolones over the years and cannot tolerate, so I don't know if it helps hand pain. Good luck finding a path to relief.
Sue
Connect
Hi Elizabeth @ess77, I don't have much knowledge on Plaquenil but did find two articles that mention it's use in treating the conditions.
"As a treatment for sarcoidosis, the antimalarial drug hydroxychloroquine (Plaquenil®) is most ... Severe vasculitis can be associated with exudates that." -- SARCOIDOSIS TREATMENT GUIDELINES: https://www.stopsarcoidosis.org/wp-content/uploads/FSR-Physicians-Protocol1-1.pdf
"Antimalarials - Chloroquine and hydroxychloroquine have been frequently used in treatment of sarcoidosis based on early randomized trials that showed a long-term benefit with chloroquine (56). However, based on the better safety profile, hydroxychloroquine is most often preferred. The mechanisms of action for hydroxychloroquine are varied; it can interfere with antigen presentation, prevent T cell activation, inhibit toll-like receptor signaling, and reduce inflammatory cytokines by T cells and B cells (57). Hydroxychloroquine has been particularly useful in cutaneous disease, hypercalcemia, and in some cases of neurosarcoidosis (58–60). Although gastrointestinal side effects are commonly reported with use of hydroxychloroquine, they are generally mild and well-tolerated (61)." -- Treatment of Sarcoidosis: A Multidisciplinary Approach: https://www.frontiersin.org/articles/10.3389/fimmu.2020.545413/full