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Kidney Disease Cure: What's the latest?

Kidney & Bladder | Last Active: Jan 3, 2022 | Replies (37)

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@petuniamom567

Every nephrologist should work with a dietician. They don't. You're on your own. Nephrologists just stand by and watch. You seem to be doing an excellent job. A job you shouldn't have to do. Treatment of CKD remains a mystery to me especially in the age of small insertion operations. There should be ways to treat the kidneys but there don't seem to be until you get to dialysis and transplantation. Something very wrong with medical system. Good luck with your self-help in the future. Perhaps you should keep a diary and about it what you'v done. May 2022 be much better than 2021.

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Replies to "Every nephrologist should work with a dietician. They don't. You're on your own. Nephrologists just stand..."

@petuniamom567 There are many causes of chronic kidney disease. Hereditary factors, high blood pressure, diabetes, medication, lifestyle choices are among them. For me, the cause is due to an ultra rare autoimmune condition [less than 50 people in the world ever diagnosed with it, no others in USA], that is clogging and shutting down the filtering components of my kidneys. Dietary restrictions are very tricky in kidney patients, as we check lab results and tailor our diets to what the numbers show, constantly tweaking what goes in to our bodies. Each patient has the choice to advocate for themselves, learn what has worked for others, and apply it to their own case. Believe it or not, most doctors really like when a patient educates themselves and works towards helping make it all work. Who knows a patient better than the patient? Dialysis and transplant are not a cure to kidney disease, they are just another treatment. I am also undergoing chemo for multiple myeloma, just finished round 5, and my oncologist is giving me as light a dose as he can, in order to not upset my kidneys more. They are at 15% function right now.
Ginger