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Kidney Disease Cure: What's the latest?
Kidney & Bladder | Last Active: Jan 3, 2022 | Replies (37)Comment receiving replies
That's my goal. EGFR between 12 and 15 for almost 10 years now. Managing to avoid dialysis so far, although had to switch nephrologists until I found one that was willing to let me try to go without dialysis. Not easy to figure out how to get enough electrolytes to stay alive but not too much. Spent one night in the emergency room for hyperkalemia but so far guessing and experimenting and researching nutrition content of everything I eat has worked.
Replies to "That's my goal. EGFR between 12 and 15 for almost 10 years now. Managing to avoid..."
Keep a close eye on your Creatnine. Toxic build up is no small matter can easily effect the heart and then you are in for double trouble. I think you should get the fistula into you and be ready for the inevitable. Sadly it is what it is . No one can sugar coat this
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Every nephrologist should work with a dietician. They don't. You're on your own. Nephrologists just stand by and watch. You seem to be doing an excellent job. A job you shouldn't have to do. Treatment of CKD remains a mystery to me especially in the age of small insertion operations. There should be ways to treat the kidneys but there don't seem to be until you get to dialysis and transplantation. Something very wrong with medical system. Good luck with your self-help in the future. Perhaps you should keep a diary and about it what you'v done. May 2022 be much better than 2021.