← Return to Starting MAC treatment with "big three" drugs: What to expect?

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@msk

Good morning. I had my ct yesterday and the got the report. I am waiting for my pulmonologist to call. (Waiting is a pain). We were looking at a nodule in the right upper lobe. It has now grown it did not disappear like my doctor thought would happen. With an additional new one. Also i have increasing nodular opacities in the anterior right upper, inferior right middle. Multiple scattered tree in bud type nodular opacities within the periphery of both lungs which some have increased and some stable in the last 3 mo. Radiologist says is likely atypical MAI. So since my positive cultures have come during same time period. Need to wait for dr but i feel that this getting worst and having physical symptoms. Taking all of this to duke on the 10th. This infection cannot be good for my lungs. I had to decide if to treat or not and wait. Unless doctor tells me otherwise i think i will treat. Why would i wait to let it get worst. Have any of you been in this situation. Please would like to hear from you. Thanks miriam

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Replies to "Good morning. I had my ct yesterday and the got the report. I am waiting for..."

Yes, Miriam, the waiting is definitely a pain. My issue was more clear-cut - I was very ill by the time MAC was diagnosed, so treating was not optional.
Given the improvement I got, in spite of the side effects, I would make the same decision again if my MAC flares seriously again.
You will be able to get lots of suggestions here for managing the medications.
Sue

Miriam, this sounds like a scary time. I hope you have a plan for treatment and start to feel confident about the path forward very soon. My best to you.