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I have smoldering Myeloma. Does anyone have this diagnosis?

Blood Cancers & Disorders | Last Active: Jun 9 9:26am | Replies (108)
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@wyom1998

My team is not specifically treating mastocytosis, but feel that my bone marrow transplant process will address it. That is the part that has made me nervous. My tryptase levels have decreased under MM treatment so something is helping.
My bone pain and lesions continue to increase and I would like to treat, but am afraid of kidney effects.
It is a tough balance. Please take care and thanks for conversation.

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Replies to "My team is not specifically treating mastocytosis, but feel that my bone marrow transplant process will..."
Ginger, Volunteer Mentor | @gingerw | Dec 31, 2021

@wyom1998 My kidney disease is not related to the multiple myeloma, but to a very rare autoimmune condition. The oncologist who is treating me is using as light a dose as possible of the chemo, just so we do not upset the apple cart if it can be avoided, with my kidneys. Earlier this week my kidney function level was tested at 15%.

I will be curious to hear from you just how everything fares for you. You tske care, too!
Ginger

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