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@annettew

I was diagnosed with LCH in the lungs in 2014. We did talk about transplants but not a great candidate for that for multiple reasons. Nobody ever mentioned bone marrow transplanting. Is there any research in bone marrow transplanting in with PLCH ?

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Replies to "I was diagnosed with LCH in the lungs in 2014. We did talk about transplants but..."

Hi @annettew From my understanding, a stem cell transplant is not option for treating Pulmonary Langerhans Cell Histiocytosis. Since it’s centralized in the lungs it would require a lung transplant. It is a possibility when LCH is occurring in the bone marrow.
https://foundation.chestnet.org/lung-health-a-z/pulmonary-langerhans-cell-histiocytosis/?Item=Treatment
Are you currently in treatment for PLCH?