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Bone Health After Transplant

Transplants | Last Active: Mar 14, 2023 | Replies (35)

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@hello1234

Good morning @athenalee 😊 I have excellent news to share! I took your advice and encouragement and spoke with my transplant nurse this morning. You were correct! She happily gave me a referral for an endocrinologist consult! I am so excited and thankful. Thank you, Thank you, Thank you "Transplant Sister!" for giving me that guidance. It will be very comforting to speak with an endocrinologist at Mayo regarding my osteoporosis treatment choices while being extra careful to protect my newly transplanted kidney!
Love ❤

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Replies to "Good morning @athenalee 😊 I have excellent news to share! I took your advice and encouragement..."

That’s excellent @hello1234! I too am looking forward to a hopeful coordination of care. I get to do labs and see my transplant MD and my new rheumatologist in the same day! Very exciting.

Funny. I’ve been doing a bunch of research on patient navigator programs for coordinated care management. I’m writing a grant to seek funding for a homeless patient navigator program. I’ve decided that it would be nice if all hospitals offered such programs. It would make life for us patients so much better!

Happy New Year! 🤗

@hello1234, Being proactive about our care, is so important after our transplant when we move back home, and away from our Mayo base of care. I am grinning with delight to read that you took the advice and encouragement given in this discussion posted by @athenalee, and that you spoke with your transplant nurse who responded favorably to your request for a referral to an endocrinologist.

There are many of us, who like to shy away from making requests of our medical teams. Perhaps we don't want to be a bother, or feel that they are just too busy, or that we are simply not accustomed to doing that. Now that you have reached out of your comfort zone, how does it make you feel? How did you bring up the request when you were uncertain? What would you say to someone who is hesitant to reach out?