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Bone Health After Transplant

Transplants | Last Active: Mar 14, 2023 | Replies (35)

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@hello1234

Hi @rosemarya 😊 It's so great to hear from you!
Yes, I am enjoying a very safe, relaxing and quiet holiday in Florida.
Regarding my osteoporosis, I have put my decision "on hold" for now. I am eating more yogurt, drinking milk, taking Vitamin D, etc.
Each medication has significant potential side effects including stopping the medication after you start can be a problem.
I am leaning towards Prolia, but definitely not enthusiastically. My doctor mentioned Forteo self-injections but I would need to do a close monitoring of the PTH hormone level to make sure it doesn't become elevated because of my kidney transplant, Fosamax elevated my liver enzymes, etc. No great answers and a little scary, so I am delaying.
I hope all is going well for you and your family. Thank you so much for checking in with me! Your posts are always so caring and helpful. I really appreciate you!
Love ❤

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Replies to "Hi @rosemarya 😊 It's so great to hear from you! Yes, I am enjoying a very..."

Hey @hello1234, have you been talking to your endocrinologist? Since you’re bone depletion is as bad as mine and, as you know, Tac makes it worse, I’d be concerned about bone breakage. My endocrinologist said for me to take 1,200 mgs calcium, plus 1,000 units vitamin D, along with yogurt and fortified nondairy milk.

Drug interactions and protecting our new organ is so tricky. So, I’ve been in the process of at least switching a couple specialists to my transplant hospital. Do you go to Mayo for your transplant issues? Could you see an endocrinologist there for some care coordination?

When do you have your next labs?