I was diagnosed around 8 years ago. I have tried every thing. Hooked up with pain mangement and have gone thru so so many different medications, shots, massage therapy. There are days that are almost pain free...butt the ones where i can take the meds prescribed to me, that nothing helps. I cry and laugh, that doesn't work either. I think that if you can find the right combination of medicines that will probably help for a while. What did your doctor say would eventually hhappen to us who have this disease?