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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 18 hours ago | Replies (371)

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@jackiez

Thanks Athena and congrats on your continued success with your new liver! I’ll try the argon oil. My Transplant coordinator and team suggested only external applications because a biotin supplement can mess with my Tacro level. So I’ll deal with the shedding for now and try the argon oil. The med change in Feb should help too!

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Replies to "Thanks Athena and congrats on your continued success with your new liver! I’ll try the argon..."

@jackiez, I want to extend my welcome to Connect. Congratulations on your 8 month/almost 1st year with your new heart/lung transplant.
I had a liver/kidney transplant in 2009. I was able to take biotin when I asked about my thinning/wirey/dry hair and my discolored thinning fingernails. I also was told to be sure to get enough calcium.
Jackie, I asked my hairdresser, who caters to cancer patients, about hair products. She recommended that I use gentle shampoo and conditioners that were on the market for cancer/chemo patients. I don't remember the brands, but she got them for me from her suppliers. You might try looking around for someone trained and experienced in the cancer cosmetics for some suggestions.

I am still doing well on Tacrolimus and Cellcept. My dose has been lowered over time and I have been at a stable trough level with an established recommended dose that works for me. I do still experience trembling on occasion, usually within 2 hrs of taking my morning dose. For me it is only bothersome when my husband will notice it and say, "Your hands are trembling". (as if I didn't know it)

@jackiez Have your transplant told you that they want to change from Tacrolimus? or is this something that you are going to suggest to them?