← Return to COPD end stage: Anyone else?

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@ronap

End stage COPD also. Room to room is tough I'm sposed to do oxygen 24/7. That's also hard. It is quite helpful. Makes level 4 tolerable. Just inconvenient.... But I suggest the Mayo clinic's mindful breathing lab. When it's available. Even with advanced COPD it did help. Most definitely worth a try. I put up using oxygen as long as I could for the fear of becoming dependent on it. And now that I'm using it I realize how much I needed it.

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Replies to "End stage COPD also. Room to room is tough I'm sposed to do oxygen 24/7. That's..."

Ron, I'm glad you mentioned Dr. Benzo's Mindful Breathing Lab. The Mayo team also publish a blog here on Mayo Clinic Connect, including videos to practice Mindful Breathing.

- Health and Mindfulness blog https://connect.mayoclinic.org/blog/mindfulness-in-health/

Are you finding ways to negotiate with the oxygen so that it's not so inconvenient?

Good morning ronap- I understand all of these frustrations of having to schlep around a tank and being careful of where you go and what you do, but where did the idea of becoming addicted to breathing come from? We are all dependent on oxygen and given how unique we all are some of us need more than others. Where there is an illness or physical anomaly that prevents us from getting adequate oxygen then we need to supplement, right? If you don't supplement then it will affect your other body parts. That's a no-no!

Your doctor prescribed 24/7 oxygen for a reason and you are doing this. I'm so happy that you are feeling better!

You did mention the wonderful Dr. Benzo and his breathing lab at Mayo CLinic.
https://www.mayo.edu/research/labs/mindful-breathing/audio-files
Did you know that these are available by clicking on the link above?

Ronap thank you for this post . I am on 24 hour oxygen as well and I am still getting use to this . I realized after my second ER trip that I must accept it as a 24 hour dependent & just knowing I have it helps with the anxiety a lot so it is great seeing another as yourself describing how I felt before . Blessings to you , Gregory