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Transplant anti-rejection medications. What's your advice?
Transplants | Last Active: 5 days ago | Replies (362)Comment receiving replies
Hi-congrats on your transplant! I am 8 months post heart/lung transplant. The shakiness with Tacro will go down as your strength builds back too. I worked hard on my arm and hand strength and I’m back to normal. I shed hair like a golden retriever (you have to laugh or you cry 😊). So it’s thin and not showing signs of improving. I will likely go from Tacro to another med in Feb, if all goes according to plan. That should help the hair loss. I had some nausea and sleeplessness but that was associated with a BP med that I’m no longer on and the symptoms went away. On prednisone and have much thinner skin now and bruise/bleed a lot easier. Just have to adapt as best I can. In the beginning lots of med tweaks and now pretty stable. Overall doing great!
Replies to "Hi-congrats on your transplant! I am 8 months post heart/lung transplant. The shakiness with Tacro will..."
Hi Jackie, I'd like to add my welcome. So glad you could join the Transplants group and add your experience, tips and questions. Allow me to introduce you to a few discussions that you may wish to contribute to:
- Heart-Lung Transplant Journey https://connect.mayoclinic.org/discussion/heart-lung-transplant-journey/
- Anyone had a lung transplant? I have questions https://connect.mayoclinic.org/discussion/lung-transplant-1/
- Living Life after your Transplant https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/
Connect
@jackiez, I had a liver transplant in August 2020. My hair was falling out big time. Someone on Connect recommended Biotin. I cleared it with my transplant team and it has stopped the hair hemorrhage! My hair is still thin, but growing back well. I started with 10,000 mcg and reduced to I 5,000 mcg daily. I also dab a small amount of Argon Oil along the roots of my hair before I shower and massage it in. I read that it helps make hair healthy. Perhaps check with your transplant team. Biotin does interfere with some labs however. I have osteoporosis (which BTW is certainly made worse by Tac) and before I do labs for my endocrinologist, I stop the biotin for five days prior.
It’s definitely a life of adjustment to our new organ and meds. I’ve found a healthy diet and exercise help. Glad your otherwise doing well!
Athena