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I have smoldering Myeloma. Does anyone have this diagnosis?

Blood Cancers & Disorders | Last Active: Jun 9 9:26am | Replies (108)
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@gingerw

@wyom1998 What is your medical team recommending for treatment of the systemic mastocytosis? Are they considering treating both disorders at the same time? I am Stage III of myeloma, but since I am also dealing with failing kidneys, we are going slowly to bring numbers down.

Please let me know how I can help you, any support that you might need?
Ginger

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Replies to "@wyom1998 What is your medical team recommending for treatment of the systemic mastocytosis? Are they considering..."
wyom1998 | @wyom1998 | Dec 31, 2021

My team is not specifically treating mastocytosis, but feel that my bone marrow transplant process will address it. That is the part that has made me nervous. My tryptase levels have decreased under MM treatment so something is helping.
My bone pain and lesions continue to increase and I would like to treat, but am afraid of kidney effects.
It is a tough balance. Please take care and thanks for conversation.

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