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Low T-Cell - Bone Marrow Biopsy

Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)

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@loribmt

Hi @mariabrat I couldn’t let another day go by without seeing how you’re doing! It’s been 6 months and I’m curious if your EB symptoms are finally waning and you’re feeling better.
I hope all is well in your life! Have you been able to see your parents recently? Any news in the ‘partner/former partner’ situation? ☺️

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Replies to "Hi @mariabrat I couldn’t let another day go by without seeing how you’re doing! It’s been..."

Hi @loribmt, its so nice to hear from you! I am sorry I didn’t reply before - The replies were in my spams.

How is everything with you? 🙂

Thanks a lot for asking. Well, I am still not feeling alright but everything seem stable. I am waiting for the full genome sequencing where we are comparing my sibling and parents blood to see the genetics and rare diseases. Its been 6 months already and no news, its a lot of data and sciences 😀

I recently started to feel dizzy and weak everyday and a lot when I drink alcohol as well - like very tipsy and dizzy after half a drink. I went to the doctor and did an ear test and blood and nothing was changed. I guess I can’t do much…

Regarding EBV, we don’t know the truth (my doctor is not convinced) and whether it could be the case, but I still take monolaurin and it helps.

On the relationship side, unfortunately he broke up a month ago, not for love but because of too much fights. I have an anxious attachment style, and my insecurities would be too much too handle. I would bring often concerns as I would need more validation/reassurance. I have to work on that but I’ve realized that being sick and stressed have impacted so much my self-confidence and ability to trust the relationship. Im very sad but he seems to want to be back at some point but I should cut contact.

I will be traveling for a few weeks to visit my family so that will be great to change my mind. How about you? How is the winter treating you and health?

Thanks a lot for your support and follow up

Xx