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Primary Orthostatic Tremor

Brain & Nervous System | Last Active: Jul 29, 2023 | Replies (29)

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@pmargaret

Yes, very much so! I have had a broken wrist and later a severe break in my arm from falls due to instability, but most people don't get it and think I can just get up and go whenever! I use a cane outside my house, but also a walker if long walking is needed and I might have to sit. Very disabling, especially since I don't think my neurologist is really concerned. I must seek someone else in the Chicago area. Any suggestions?

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Replies to "Yes, very much so! I have had a broken wrist and later a severe break in..."

So sorry you’ve had fractures to deal with. I am so fearful of falling during the winter (osteoporosis plus O.T.), and stay home if it is at all slippery outdoors. Orthostatic Tremors is so misunderstood. I find even those who know I have it, forget my struggle to stand, because I can walk!