← Return to I have smoldering Myeloma. Does anyone have this diagnosis?

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@loribmt

Hi @flightdeckjohnn, first I have to ask about your name, FlightDeckJohnn! Did you serve on a aircraft carrier? If so, thank you for your service. That had to be one heckuva an experience. I’d imagine you have a million stories to share.

From what I’m understanding, your wife has smoldering myeloma, which is also called asymptomatic myeloma. It’s a blood disease that progresses very slowly and can be significantly delayed from developing into multiple myeloma with the treatment of Revlimid.

I’m sure it’s troubling for both of you that there’s been a change in her health with the loss of appetite, diarrhea and now these red spots near her ankles. Is she having any swelling/water retention in her legs?

With these new symptoms has your wife been in to see her hematologist/oncologist to determine if there’s been any changes in her myeloma situation?

Do you have any specific questions I can help you with?

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Replies to "Hi @flightdeckjohnn, first I have to ask about your name, FlightDeckJohnn! Did you serve on a..."

she had a stem cell transplant2012 for multiple myeloma been in remission since,been on 5 mg since. Is it possible after8 yrs to start getting side effects from revlimd?

If I read your comment correctly, the diagnosis is both MM and Myeloma? Please confirm
I have been searching for someone else with both like me.
It seems to be rare.