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Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: 3 days ago | Replies (284)Comment receiving replies
Hi @notgivingup17, I'm sorry to hear that the doctor's seem to be giving up on helping you. I've been on the Protocol 525 since 2016 when we ordered the individual supplements before it became the 525. The reason it's called the 525 is that we used to take 20+ pills/capsules daily and it's now 5 in the morning, 2 at noon, 5 in the evening for 525. You can read my neuropathy journey here - https://connect.mayoclinic.org/comment/310341/
From your description it sounds like nerve compression in your spine is possibly causing some of your symptoms. There is a discussion started by @jenniferhunter which you might find helpful - Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There are several discussions on LDN that you might want to read through:
-- Low Dose Naltrexone and Neuropathy: https://connect.mayoclinic.org/discussion/low-dose-naltrexone-and-neuropathy/
-- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/
-- Low-Dose Naltrexone for Chronic Pain: https://connect.mayoclinic.org/discussion/low-dose-naltrexone-for-chronic-pain/
Sometimes it can be overwhelming if you focus on the pain and what tomorrow will be like. What helps me is taking each day one at a time and focusing on positive thoughts to keep me in a good frame of mind. If you have a little time, here is a website I've found really helpful - https://www.resilientoption.com/resilience-bytes
Replies to "Hi @notgivingup17, I'm sorry to hear that the doctor's seem to be giving up on helping..."
johnbishop, I also want to thank you for the information about Myofascial Release, I will most definitely try this! God bless you and have a happy holiday : )
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Thank you so much for replying to my testimony. I'm so thankful to know I'm not alone in this journey but I wouldn't wish this on anyone. My surgeon went over my MRI and told me there are no compression on my spine. It's possible I have some in my neck. I was hit from behind many years ago and had a whiplash but didn't get it check out. My surgeon said I have some issue in my neck but we only need to keep an eye on it and do not extend my neck back for a long period of time. I don't want anymore surgery since the last one didn't help me much, I have a feeling I was misdiagnose even though I did see the herniation. He's a very knowledgeable surgeon but I don't have a lot of faith in surgery anymore. I had a feeling the herniated disc wasn't all of my problems because of the way the pain started.
I really appreciate you information, wisdom and links to other websites. For now I'm going to see if this LDN help because I'm despite for relief.