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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: 4 days ago | Replies (284)
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@johnbishop

Welcome @simina1234, When I was first diagnosed with small fiber PN I looked into the infrared therapy but was concerned about the cost of the treatments with no end in sight or guarantees so decided against it. I also saw something similar I thought might be helpful but have not tried it. There are a couple of discussions you might find helpful to learn what others have found helpful.

-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Infrared Sauna Treatment for PN: https://connect.mayoclinic.org/discussion/infrared-sauna-treatment-for-pn/
-- Laser Therapy for Neuropathy: https://connect.mayoclinic.org/discussion/neuropathy-1/

@juanito and @ecc79 may be able to share their experience with infrared therapy with you.

Are you able to share a little more about your symptoms and any treatments you started or that have been recommended by your doctor?

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Replies to "Welcome @simina1234, When I was first diagnosed with small fiber PN I looked into the infrared..."
simina1234 | @simina1234 | Dec 17, 2021

Thank you John ! I have read you are in protocol 525. I have also read and thought about it .
My concern is that I weigh only 100 lbs and cannot take more than 4-5 pills a day ( heartburn, stomach ache …) . I see the protocol had 12 pills a day.

Do you get side effects from the protocol ?

Do you take all the vitamins every month ? What happens if you stop for a few weeks/ months ?

Thanks !

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