Hi Rosemary! I always enjoy your posts, As a caregiver I wish I had known more about the possibility of organ rejection. It literally threw me for a loop. When you get the go ahead, because you want the transplant so badly, you kind of space that everything might not be perfect, at first. I did my research, that’s for sure, but I ignored the rejection, and concentrated on all the wonderful, good things that were coming! And so they did! And now, as of Oct, we have the complication of a 3mm kidney stone which does not look like it will pass. Due to the shortened, crooked ureter, surgery is required to remove it. Due to the location of the stone, a laser blast is not going to work. However, my husband has a consult Jan 26. Hopefully we can have the tests done here in Las Vegas and a video conference rather than fly in and out of Scottsdale! Every day is a new day!
I regret not taking time for me, too, as I crashed and burned 9 months post transplant. I have learned from that too. I am no good to anyone else if I don’t take some time for me, without guilt. My husband encourages me to do what makes me happy. Now, if we could kick Covid in the teeth, we can all carry on!
Best wishes to everyone entering this stage of your journeys. It is a gift.