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I have been told I need a liver transplant. I have been diagnosed with G.A.V.E Disease last month before that I was diagnosed with fatty liver and starting of cirrhosis back in 2016. When I started throwing up blood in May they put a shunt and tips in my liver. They have referred me to a transplant hospital, but they haven't sent my paperwork from here. I want to get a second opinion but I don't know where to go. Any suggestions
Replies to "I have been told I need a liver transplant. I have been diagnosed with G.A.V.E Disease..."
Tmmmrits, if you would like to consider getting a second opinion at Mayo Clinic, here is the link to inquire http://mayocl.in/1mtmR63
There are three Mayo Clinic locations in Arizona, Florida and Minnesota.
@tmmmrlts, I am thinking of you and although it has been only 3 weeks since you posted here, I know that for a patient with liver disease and transplant referral, that it can feel like an eternity. I also know that making connections with medical providers can be difficult during the holiday schedules.
I hope that your records have been submitted by your loal provider to where you requested. Did you see the Mayo contact information that Colleen posted for a second opinion?
Where are you as far as getting a referral to a liver transplant clinic?
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@tmmmrlts, I want you to get the best care that is available to you.
I was able to be evaluated and listed at my regional transplant center in central KY for my liver transplant in 2008. And then, when I needed specialized care, it was the director of the transplant center who contacted and arranged for me to be transferred to the Mayo Clinic in Rochester MN, where I was treated and where I got my transplant. I would recommend the Mayo Clinic to anybody who is looking for the best transplant center. However, distance would have been a barrier for me if not for the emergency/life-death status of my condition.
Have you been successful in tracking down the status for who is sending your your medical records? It is highly possible that someone has sent them and they are 'lost' in the cyber world. It is also possible that they did not get sent. I suggest that you make a personal visit to the records department of your medical center and get paper copies of everything so you can hand deliver if necessary.
I have located this Blog post > Transplant>Three Reasons Why Getting a Second Opinion Is Worth It
Here are Three Reasons Why Getting a Second Opinion Is Worth It from the Transplant Blog on Mayo Connect.
1-To make sure you have the right diagnosis.
2-To get another potential chance if you were turned down.
3-To be at a center of expertise for your specific condition.
Here is the link to the full article:
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/three-reasons-why-getting-a-second-opinion-is-worth-it/
You can also contact the Mayo Clinic Transplant Center for more information about getting second opinion there-
Contact information for Transplant Center FL. MN. AZ
https://www.mayoclinic.org/departments-centers/transplant-center/contact-us/
What is your current doctor doing to support you?