I’ve been on anti-rejection meds for almost 28 years. First kidney transplant in 1994. I started on Sandimmune (Cyclosporine) and prednisone. Switched to Cellcept a few years later, then to Mycophenolate a few years after that. First transplant started to fail about 4 years ago and I was lucky enough to get a second transplant in 2019. Now. I’m taking Mycophenolate, Tacrolimus and Prednisone.
Side-effects have been acid reflux, skin issues, low magnesium, high blood pressure and recently hair loss. But I’m 69 now, so some of these could be age related.
My dosage of the anti-rejection meds frequently changes depending on lab results. So make sure you don’t run low on them. The dosage could go up and you don’t want to run out.
My advice is to follow your doctor’s orders and always tell them when something is bothering you, no matter how insignificant you think it might be. Try to get some exercise a few days a week, even if it’s just walking, and stay hydrated.
Good morning @tjdog 😊 Wow, you definitely have years of experience with your kidney transplants. It sounds like your first kidney functioned well from 1994 to 2017, so 20 years, right? That's wonderful! Did you have a living donor?
I am a one year post kidney transplant patient on MMF and Tac too.
Congrats on your new transplant in 2019! My question is, what has been your experience with protocol kidney biopsies? How often did you have them and were they helpful for "catching" signs of rejection or problems or did your docs use other tests to diagnose? Thanks @tjdog