Pancreatic Cancer Group: Introduce yourself and connect with others

I had a great experience, if any surgery is great. My surgeon had done open surgery as he liked to really see what was going on and he had me in recovery in less than 4 hours. I had a spinal block that allowed me to walk more comfortably the next morning and was sent home in 5 days since I met all the requirements for release. Did great for 2 weeks and then major intestinal cramping and gas as things healed. This lasted for a good 4 weeks and on my revisit with my surgeon, he assured me this was normal and it would get better and it did so in the next week or so. I ate a lot of peanut butter and saltine crackers, a couple at a time, to get protein without a lot in the gut. I also drink high protein, 30 grams, once or twice a day. Fighting metastasis to the liver right now and fighting is good for the soul. I do everything I can to enjoy life with family and friends. Keep a positive outlook,, talk frankly with your medical team and move forward. My Nurse Pract. suggested that use Galviscon for cramping and gas and it helps me a lot. Drink lots of water (which I am bad about doing) and eat what you can. Talk with this group. I am sure that others have good suggestions as well. Take care and smile, even when it hurts.

The best to you for Monday. Ask them to do a CA19-9 blood assay which they use as a marker for Pancreatic Cancer. Whatever your diagnosis, face it with positive mindset and readiness to do whatever you need to do to get better. Let us know your diagnosis and use us all as sounding board. Get a support system ready to help you, family, friends. It is so so helpful. I have had wonderful friends backing me on my journey and it helps to keep me positive. My family is always there.

Hello: If it would help you, I can certainly share it with you. I have been thinking about writing more about it for quite a while. My recovery from the Whipple was also very slow. I was so weak and could not eat much. I can share with you what I did and/or how I coped, if would help.

Hey, So I am scheduled for surgery next Monday the 20th. the doctor still feels he can get it out unless when he opens me up he sees spread and he will stop the surgery. This has me a little stressed of still not knowing if the surgery will proceed. the 2nd CT scan showed no spread so I pray that is the case. Thank you so much for your concern and thoughts.

I had a pancreatectomy in October of 2020. The surgeon also removed my gallbladder and spleen. I’ve lost 40 pounds and I consume lots of calories. Unfortunately I have trouble retaining the calories. That said I have made progress and look at my situation as the new normal. I try and workout daily(slowly so as not to burn more calories). Weight lifting and strengthening your muscles is helpful and gives me energy. Enjoying walking in nature is also uplifting. I am thankful to still be alive after being diagnosed with pancreatic cancer in 2019. Next week I am having a suspicious nodule removed from my lung. When you have or have had cancer the scans, bloodwork and suspicious nodules are part of a new normal too. It’s a rough road, but one full of great people and caregivers.

Ellen, how large is your nodule and is it only one? I have several but we are doing chemo. They have not considered removal. How did your team come to this decision? Good luck on all counts.

The best to you for the 20th. Move as much as you can post surgery and as soon as they say okay, consume liquids and soft food to get those intestines working, Hope they use a spinal block with you if open surgery, it helps so much with mobility. Will be thinking about you.

Actually I have two— one on each lung. They are very small— they tried a biopsy but could not get enough of a sample. My oncologist sent me to a thoracic surgeon. Next Tuesday he will remove the bigger nodule. If it is cancerous he will remove the second one 4-6 weeks later. The nodules have grown over the last few months which makes them “suspicious”.

We all wish you best wishes and positive thoughts. God bless
Sincerely Susan

Hello @cindysavant

I was thinking about you and your husband. Was he able to get an appointment at Mayo?