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Multiple Myeloma: Come introduce yourself and let's talk
Blood Cancers & Disorders | Last Active: Feb 13 1:18pm | Replies (220)Comment receiving replies
@ancopau1998 Let me welcome you to Mayo Clinic Connect! I see you have posted in a couple of different conversations here today, good for you for jumping right in!
Like you, I am a multiple myeloma patient, taking Revlimid 21 days on, 7 days off. Along with a weekly dose of Dexamethasone and SMZ TMP for antibiotics. Since I also deal with a rare kidney disease [not related to the myeloma] my oncologist decided we would go very slow in treatment in order to not stress the kidneys any more than necessary. What dose do you take for the Revlimid, if I may ask?
Neuropathy is the pits, isn't it? I have it in my left foot, mostly just numb, same as you! It's hard to remember to step out with my right foot, since it is way too easy to lose my balance with a numb foot! Do you have that problem, too?
How long have you been in treatment? How were you diagnosed?
Ginger
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Hi Ginger, I had a total knee done in 2016 and in 2019 it got infected and they had to take out everything and had no knee for 6 months. Infection was gone and then they put the knee back in and I then had to see my Kidney Dr. and that's when he did tests and from there a BMB and WaLa Multiple Myeloma. My kidneys are bad from diabetes and stay the same GFR around 30. So on Valentines Day I will have MM for 2 years. I did have slight numb feet from diabetes but it has gotten much worse. I'm only on Revlimid now for about 9 months 5mg. Those numbers kappa Light Chain are kind of staying good. I was on the antibiotic SMZ but my Kidney Dr. wanted me off. I just seen my Oncologist today and she is going to talk to him and let me know.
As far as the neuropathy iI have it in both feet so it does not matter which foot goes in front of the other. I hope you are doing well, you sound just like me. Hope to stay in touch!! have Great Holidays!!