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DiscussionTransplant anti-rejection medications. What's your advice?
Transplants | Last Active: 5 days ago | Replies (362)Comment receiving replies
Replies to "I am post heart transplant 19 years. The entire time I have been taking mycophenolate and..."
As Rosemary says, wow! Very inspiring. Thank you for sharing.
Hi, @azdan99. Wow! Your message of 19 years on the immunosuppressant meds, mycophenolate and tacrolimus, are an inspiration for me!
I had a liver and kidney transplant in 2009, and if my math is correct, that is 12 years for me on mycophenolate and tacrolimus. I also used to take prednisone , because that is what my doctors prescribed according to the current research at the time. Like @athenalee, I used to ask about my medications. One year I decided to stop asking, and that is the year that my doctors told me that they wanted to take me off the prednisone. I was surprised and asked them, "Why now". They said that research indicated that for some patients, the prednisone could be stopped. I was in the 'could be stopped' category.
@azdan99, I am happy to be like you - rejection free with a healthy (transplanted) kidney. I am also, happy that my transplant team prescribed my medications according to the research that related to my current and underlying conditions. @athenalee, I commend you and I thank you for continuing to share relevant /reliable research and information in e transplant discussions. We all benefit.
@athenalee, What is your purpose in wanting to change medications?
Will you post a follow-up after you have your appointment?