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Acute Myeloid Leukemia with Aberrant CD7

Blood Cancers & Disorders | Last Active: Dec 22, 2021 | Replies (41)

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@loribmt

Hi Lodi! Just popping in for a pre-holiday check up. 🤶🏻 How’s Richard doing? He’s in month 4 post SCT now. He should be cruising along a little easier with life taking on some normalcy and predictability. He’ll also be able to resume a few more activities around the house as his energy and stamina pick up. As always, avoiding illness is his goal. So, masking up is essential anywhere out in public or if people are in your home.

This is where I add; With a SCT you really need to keep a sense of humor and a sense of adventure because there can be these random, capricious side events at any given time, especially if there’s a Tacrolimus taper. Usually nothing earth moving…aches here, a rash there, tender joints, etc. He should report anything out of the ordinary to his team for consideration.
While he’s past the early stages of transplant where Acute graft vs host can run rampant, chronic GvHD is always a possibility, but generally develops slowly and is most often manageable. You just don’t want to let it get out ahead.

I hope you’re also doing well and getting back into a rhythm for yourself. It’s a challenge to balance everything. I know you’re compassionate and caring, and have dedicated the past year or so to getting your husband healthy and whole. But it’s easy to lose yourself in the process. You have your artistic side that needs to be expressed! So I do hope you’re finding the path back to YOU!

We’re getting ready to leave your warm state of Florida to return to Wisconsin for the holidays. Brrrr. To quote Arnold: We’ll be baaaack! (End of January into March!). It’s going to be a shocker in the meantime. I have to wear long pants again and find my shoes!! And socks! 😂

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Replies to "Hi Lodi! Just popping in for a pre-holiday check up. 🤶🏻 How’s Richard doing? He’s in..."

Hi Lori-

Always great to hear from you! Would have loved to connect in FL...maybe next trip!

So news here...just the facts! My partner contracted Epstein Barr Virus a few weeks ago which accelerated and then seemed to disappear. His blood work is all over the charts...out of range RBC, WBC, ABN etc. Platelets are OK. They gave him an infusion of Rituximab last Monday for Epstein Barr and I'm not sure if they will continue as the virus appears to now be undetected!
His chimerism was at 75% in the second number (T cells) and 100% for 1,3 and 4. They have reduced the Tacro, which is now at a normal level, 7, thinking that may solve the problem.
He just had a BMB and we are waiting for the cytogenetics.

That's the story at the moment. Wishing you a wonderful holiday season!

Many thanks always for just being you!
Always be kind to yourself. You deserve it!

Warm regards,

Lorraine