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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@wizzywinkles3

I have been tapering off Pregagablin (Lyrica) and had a severe and frightening experience.
I have cervical osteoarthritis and Lyrica was not helping the nerve pain . I cut down from 150mg to 100mg .
One morning my entire left side started twitching involutarily, I literally could not move to call a taxi for over an hour.
I don't scare easily, but it was terrifying.

My heart was burning and painful.
When i got to hospital finally, they could find nothing in tests.
I knew it was the Lyrica tapering as i have read of so many other people who have had similar experiences when cutting down.
One friend thought he was having a stroke and heart attacks.
Has anyone here had a similar experience?

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Replies to "I have been tapering off Pregagablin (Lyrica) and had a severe and frightening experience. I have..."

@wizzywinkles3
I took Lyrica, I believe in the mid 2000’s. I was taking it primarily for Focal seizures with hopes it would help my Neuropathy also but it didn’t help either. I had similar side effects but I wasn’t trying to get off it at that time. I wrote to the FDA regarding the symptoms. I had no problem coming off it.
I list Lyrica as a contraindication on my MedicAlert bracelet.
Jake