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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (329)Comment receiving replies
Hello Coleen and Stan. I had my labs drawn last Friday, They are still fairly good. H&H is 13.3 and 40.5 ( both of these up from last labs WBC is now 4.7 but was 6.4 on 11/16. I feel great and have still been trying to cut sugar out of my diet and drink plenty of water as well as eat as much protein as I can. I'm also increasing the iron I eat as well.
I will be getting another CT to measure the size of my spleen this week.
I am trying to maintain a good attitude but have my good and bad days. I will be seeking a second opinion on 12/17 at Mayo in Phx. I have 2 more Rituximab infusions, that will make it 8 total by 12/20. Good Luck with your SMZL journey. I believe this medication is helping me, at least at this point in time.
Replies to "Hello Coleen and Stan. I had my labs drawn last Friday, They are still fairly good...."
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It is interesting to see how the infusions are improving your health and like to hear comments on diet and exercise. Also of interest to me is to see the lab test changes. During my watch and wait, my doctor has labs every three months and seems to be watching for a drastic change. I was diagnosed in 2019 but blood tests back to 2017 started to show a steady change from normal. Total WBC went from 9 to most recent test 11.3, The Lymphocytes from 4.4 to 6.4. Platelets from 166 to 91. But Hemoglobin and Hematocrit have stayed around 14.5 and 44.5 the whole time. Spleen is growing and at 16.8 cm.
From everything I've read, there are a few variations of SMZL, and the standard of care seems to be evolving as well. All are things to discuss at the Dr. appointment.