← Return to Paralyzed Diaphragm
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Lung Health | Last Active: Nov 20 5:32pm | Replies (341)
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@topjob67 It must be terrible watching your husband struggling to breath. He's really lucky to have you in his corner trying to find help for him. I feel as though my last post wasn't very helpful; so I wanted to make a couple of concrete suggestions on things you could do to find a knowledgeable pulmonologist and thoracic surgery...hopefully near you. If your husband will need surgery to hold his paralyzed diaphragm in place to facilitate his breathing, it will be done by a thoracic surgeon, hopefully one who specializes in minimally invasive thoracic surgery using robots. They are located at bigger hospitals and medical centers. US News rates hospitals and speciality departments like pulmonology. You could do a google search on top hospitals in *** (insert your state) in pulmonology and lung surgery. Or a google search for best thoracic surgeons who do minimally invasive chest surgery in *** (insert your state). Or a google search on best pulmonologists in *** (insert your state). Another option is join the facebook group for people with paralyzed diaphragms (do a google search to find the link) and ask for recommendations for both pulmonologists and thoracic surgeons who do plication surgery near you. There are over 830 members with paralyzed diaphragms from all over the states and world who are more than willing to share the names of doctors who have helped them. I don't know if any are near you, but it's worth a shot. They will also answer specific questions you might have about paralyzed diaphragms, provide incredible support for you, and suggest things you might do to make your husband more comfortable while you are trying to find the best doctors for him. I really hope it helps to know you aren't alone in this really daunting task...members on Mayo Connect are here to help you and members on the facebook group will be too, if you're interested in joining. Please keep us posted! I'll be thinking about you.