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Paralyzed Diaphragm

Lung Health | Last Active: Sep 28 3:59pm | Replies (338)

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@topjob67

My husband was also diagnosed recently with a R paralyzed diaphragm. He is on constant O2 and uses a nebulizer. Physically he is very limited, he’s always struggling for his next breath. No one in our area seems very interested in his case I believe because he is 72 but we have always been very active and I believe everyone deserves a better quality of life.

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Replies to "My husband was also diagnosed recently with a R paralyzed diaphragm. He is on constant O2..."

@topjob67 There are caring knowledgable doctors out there who can help your husband, irrespective of his age. It's just a matter of finding them, which can be a challenge. Because a paralyzed diaphragm is so rare, not a lot of doctors know about it or how to treat it. If you aren't finding them locally, perhaps you could try a larger medical center like the Mayo Clinic or one associated with a university. Thoracic surgeons seem to be more familiar with treating it than even pulmonologists. I did a videoconference with Dr. Mark Ginsburg, who is director of the Diaphragm Center at Columbia University in New York. He is the leading expert in the country and perhaps world on paralyzed diaphragms. I didn't need a referral from a doctor, and Medicare covered the cost of a second opinion. I'm 75, and he recommended a treatment plan for me that is going to enhance my quality of life. I hope your husband finds the care he needs to do the same.