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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (329)Comment receiving replies
I have a bit of stomach pain as well. I think the size of the spleen is leaving less room for my stomach. Well that is what I read somewhere . A couple weeks ago cdwilm27 had commented of fatigue and I think low hemoglobin and hematocrit was mentioned and were improving following treatments. I wonder if things are getting better.
A year ago I suspected a back problem was caused by my SMZL but it wasn't. I wanted to make SMZL the bad guy.
Anyway, will you remain on watch and wait and return for a check up in 6 months? Are you seeing a Hematologist in Rochester?
Replies to "I have a bit of stomach pain as well. I think the size of the spleen..."
Hello Coleen and Stan. I had my labs drawn last Friday, They are still fairly good. H&H is 13.3 and 40.5 ( both of these up from last labs WBC is now 4.7 but was 6.4 on 11/16. I feel great and have still been trying to cut sugar out of my diet and drink plenty of water as well as eat as much protein as I can. I'm also increasing the iron I eat as well.
I will be getting another CT to measure the size of my spleen this week.
I am trying to maintain a good attitude but have my good and bad days. I will be seeking a second opinion on 12/17 at Mayo in Phx. I have 2 more Rituximab infusions, that will make it 8 total by 12/20. Good Luck with your SMZL journey. I believe this medication is helping me, at least at this point in time.
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The doctor I am seeing is with Humphrey Cancer Center - North Memorial.