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Extreme outer ear pain: What can it be?

Ear, Nose & Throat (ENT) | Last Active: Aug 8, 2023 | Replies (402)
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@ocbette

Look up Relapsing Polychondritis. Read everything you can find on the web. I truly believe this is what I have and my doctor agrees. Unfortunately there isn’t much to be done for it but if you feel what you are experiencing, then you can bring it to your doctors attention.
Many people have this and have gone through the same reaction from our doctors. They simply don’t have the knowledge of this rare disease.

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Replies to "Look up Relapsing Polychondritis. Read everything you can find on the web. I truly believe this..."
Colleen Young, Connect Director | @colleenyoung | Dec 11, 2021

This Q&A from Mayo Clinic talks more about relapsing polychondritis:
- Dear Mayo Clinic: I was just diagnosed with relapsing polychondritis. What has been your experience with this disease? https://newsnetwork.mayoclinic.org/discussion/rare-disease-causes-inflammation-of-cartilage-throughout-body/

This information from National Organization for Rare Disorders (NORD) is also helpful: https://rarediseases.org/rare-diseases/relapsing-polychondritis/

@ocbette, while there is no cure for RP, there are treatments. Has you doctor suggested corticosteroid drugs (e.g., prednisone), aspirin and non-steroidal anti-inflammatory compounds such as dapsone and/or colchicine? What do you do to relieve the pain and tenderness?

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