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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Nov 15, 2024 | Replies (329)
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@reneemp

My biggest symptom is fatigue and joint and stomach pain. I am tracking my food intake, energy levels and sleep quality to see if there is any pattern. I am still in a huge learning curve about lymphomas and am finding it all confusing. My bone marrow results confirm I have smzl based on what my doctor shared yet when I read the results it means nothing to me.

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Replies to "My biggest symptom is fatigue and joint and stomach pain. I am tracking my food intake,..."
stankent | @stanleykent | Dec 8, 2021

I have a bit of stomach pain as well. I think the size of the spleen is leaving less room for my stomach. Well that is what I read somewhere . A couple weeks ago cdwilm27 had commented of fatigue and I think low hemoglobin and hematocrit was mentioned and were improving following treatments. I wonder if things are getting better.

A year ago I suspected a back problem was caused by my SMZL but it wasn't. I wanted to make SMZL the bad guy.

Anyway, will you remain on watch and wait and return for a check up in 6 months? Are you seeing a Hematologist in Rochester?

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