AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare pulmonary disorder at the benign end of the neuroendocrine cells proliferation spectrum. It falls under spectrum of of preinvasive lesions of the lungs. It is mainly seen in non-smoker middle-age females with a history of chronic cough or asthma.

I don't know if anyone else has direct experience with DIPNECH, but you may wish to also explore this discussion:
- Typical Carcinoid Tumor in Lungs https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/

I also want to invite you to the monthly NETs support group hosted on Zoom with a social worker from Mayo Clinic. All are welcome whether you're a Mayo patient or not. The next meeting is Jan 6, 2022. See details here:
- Neuroendocrine Cancer Support Group Meeting https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-fl-1-108/

When are you scheduled to get the Netscan?

Hello @amd12

I was thinking about you and wondering if you have had the Netscan yet. I hope you are doing well and have the needed information to make an informed decision about surgery.

Will you post an update at your convenience?

Hi @amd12 -- Are you still using this message board? Just wondering what the status of your case is and if they ever determined if you had DIPNECH. I have DIPNECH/Lung NETS typical carcinoids. How many tumors do you have? How large are the ones that are remaining?