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Cervical dystonia (Spasmodic Torticollis): Looking for support

Spine Health | Last Active: Jan 13, 2022 | Replies (28)
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@crepass

Thanks Elizabeth, so much helpful information. I am glad your son have found help through Mayo doctors, I am new on this journey and have no pain so far. My tremors are still somewhat controllable except in stressful situations. I will get first Botox txs in January. It is good to know that there is a close Mayo doctor in Florida if I need help.

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Replies to "Thanks Elizabeth, so much helpful information. I am glad your son have found help through Mayo..."
ess77 - Elizabeth | @ess77 | Dec 7, 2021

@creoass and all...Is your present doctor who will give you the botox shots a neurologist? movement disorder specialty in neurology? If your illness progresses and the shots don't seem to help, suggest you look for the sub-specialty of a movement disorder physician. It has made an enormous improvement in my son's care.
He finds great help from good massage therapy as well, to loosen the tightening muscles. The doctor has referred him for acupuncture.
The integrated services are helpful for him.
blessings as you get the help for health! elizabeth

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