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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)Comment receiving replies
Stan, I wanted to pick up on the question you asked "I am wondering, what event(s), or test (s), triggers going from watch and wait to IV therapy?"
I found this info:
- https://www.lymphoma.ca/wp-content/uploads/2021/08/LymphomaCanada_FactSheet_SMZL_Digital.pdf
See page 5
"The development of certain symptoms will suggest moving from a watch and wait approach to treatment.
Symptoms can include symptomatic or progressive splenomegaly, low blood cell counts or symptomatic
lymph node enlargement."
Like you, I'd be interested in hearing directly from the hematologist what they are monitoring and what they suggest you should watch for.
@reneemp, I see you're interested in the same thing. Do you have any symptoms or things you and your team monitor closely?
Replies to "Stan, I wanted to pick up on the question you asked "I am wondering, what event(s),..."
My biggest symptom is fatigue and joint and stomach pain. I am tracking my food intake, energy levels and sleep quality to see if there is any pattern. I am still in a huge learning curve about lymphomas and am finding it all confusing. My bone marrow results confirm I have smzl based on what my doctor shared yet when I read the results it means nothing to me.
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Colleen, Thanks for sending the link. It is an interesting article. As this progresses, at some point, one of those physical problems will begin to manifest itself and a treatment plan will be needed. And every case is a bit different. . I was just curious what others have experienced.