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DiscussionMysterious shortness of breath: What has helped you?
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Replies to "I have just this week been diagnosed with paralysis of right side diaphragm. Also have atelectasis..."
Thank you for your insights.
No SNIFF test taken. Meet with doc in 10 days. Will discuss then.
Oh, dear. I'm sorry to hear this. It's wonderful to have a diagnosis so you can figure out what you are going to do about it; but you have quite a journey ahead of you to find a doctor who knows about this condition and how to treat it, A paralyzed diaphragm is a really rare condition, which most primary care doctors and even most pulmonologists have never come across. I don't want to beat a dead horse, but did you have a SNIFF test? From everything I have learned since my diagnosis of a paralyzed diaphragm in Nov 2020, you really have to have this test before a definite diagnosis of paralyzed diaphragm can be made. Have you been referred to a pulmonologist? I posted a video about the options available for treatment of a paralyzed diaphragm in the lung discussion group that might be helpful to watch when you're ready. I know I had to sit with my diagnosis and just process it before I was ready to figure out my options for dealing with it and move ahead. Please do get a SNIFF test if you haven't.