@vicky9, @crepass. and all...My son is on 100% disability for 20 years, developed cervical dystonia at age 35. He has lost the important years of his life, suffered immensely, and lives an isolated, painful, lonely life. I help him as I can.

It took me so long and hard searching to find someone qualified to diagnose his problems. He is now, finally, seeing an internationally known leader in the Movement Disorder field of Neurology at Mayo Clinic Florida. It's a gift from above!

This wonderful doctor is caring, understands this and all movement disorders He truly understands my son's issues, he knows exactly where to give the shots, how much Botox to deliver with each, My son tells me this doctor is the best of several who've given him botox shots. He thinks it's miraculous. The help he gets from these treatments is helping him so much. He was on all the opioid meds for many years. With no diagnosis, the docs often thought he was a druggie. He's not. He's in severe pain and couldn't get help for years. I've fought long and hard to get him to this point

He also now, for 2 years, has a morphine pump, with dilaudid. It has taken most of the pain and gotten it under some degree of control, except the shoulder/neck/arm pain that Botox helps.

His third leg of help is medical marijuana. He uses MM daily, vapes, and also the CBD/THC lotion. I use it to help relieve pain in my hands, feets, legs, and back. Arthritis pain, fibro, and sarcoid pain. It is amazing. I also used it on a horrible rash/blistering on my body and it instantly stopped the pain and led to healing. It's amazing stuff.

Find a Movement Disorder specialist, neurology. This is the only doctor who can properly diagnose and treat cervical dystonia. He got the pump from his pain clinic and can now add a boost 4-5 times daily if needed. which probably save his sanity, as he can control the Dilaudid based on the pain using a battery-operated device to click and add med.

It's a combinaltion of treatments developed for the patient's specific needs. I recommend a major clinic or research center, like Mayo Clinic. This doctor treats patients from all over the world. He has conducted years of research and is well known for his findings in movement. He treats me for Parkinson's symptoms, well.

I hope this information has helped and will help you find peace. This is a horrid disorder and very difficult to diagnose and treat effectively. After many years of pain and mistreatment, he is finally finding some relief, from his Mayo doctor.

Blessings and may your find help and peace.
elizabeth

I will let you know how it goes. Thank you for responding.