← Return to MGUS diet: Any tips on food to enjoy or prevent progression?

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@hi2l

I was diagnosed with ITP, CAD (Cold Agglutinin Disease) and MGUS after a pre-surgery CBC in 2018 for a torn rotator cuff found platelets too low to proceed. Hematologist ordered a bone marrow biopsy resulting in my diagnosis. Was told there was no treatment for the CAD and MGUS. I have been treated with prednisone, IVIG, Promacta and now Nplate for the ITP. Platelets were 10 at the start and are now in mid 80's. I wasn't too concerned with the CAD and MGUS since I'm still going through weekly infusions of Nplate this past year. After reading the comments on this post I'm wondering if I should be concerned about the potential chance of MGUS changing to cancer. It seems like my body is trying to attack my blood in a number of different ways.

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Replies to "I was diagnosed with ITP, CAD (Cold Agglutinin Disease) and MGUS after a pre-surgery CBC in..."

Oh gosh, @hi2l. I'm sorry that the comments here have made you more fearful than necessary. On average, about 1% of people with MGUS go on to develop multiple myeloma each year. That can change over time, but it shouldn't be cause for additional concern. Your health care team is obviously monitoring you closely. Awareness need not equal worry. I like to call this active surveillance and getting on with life.