Small Fiber Neuropathy: What helps?

I also have some of your same issues. I was told let's deal with one issue at a time, meaning they are not connected. Like you, I looked it up and they are connected. I have a new dr appt. in a few days. Let's see what he has to say.

EMG/NCS testing assesses the functionality of the "large" fibers. These are the ones that are employed for both "voluntary" and "autonomic" functions. Based on these tests, my first Neurologist concluded "SFSN". I brought the written results to a second Neurologist. She had some doubts and conducted the tests again.
Her conclusion?
CIDP.
She followed up with numerous blood tests and I am now undergoing Ivig infusions.
Apparently the EMG/NCS tests are tricky and subject to variables, including "temperature".
I suggest a second opinion.

Did your first neurologist do the skin punch biopsy to get the SFN diagnosis?

Neither Neurologist did a skin biopsy. I am not sure why.
With respect to Neurologist #2, my guess is, my description of (sensory) symptoms, along with EMG/NCS findings pertaining to motor nerve issues, is sufficient to conclude both large and small fibers are demyelinating

It took 13 doctors before I was diagnosed with SFN. It was a podiatrist that recognized the symptoms within 10 minutes. My understanding is a skin biopsy is the only way to rule it in or out. My first neurologist never mentioned the possibility. He sent me to balance therapy that did nothing to help. Now that I know it is SFN I'm on the hunt for some improvement.

Glad you brought it up! I see my Neurologist Tuesday. Will add it to my list of questions.

Went to top neuropathy doctor at Duke and had EMG. She said "Yes you have small fiber neuropathy. Bye,Bye. I don 't treat that. Find a rheumatologist to help you."

Something I've been experiencing for awhile now is random fingertip pain in all 10 of my fingertips which usually starts at night and lasts for a few days. The timing is very random and I can never pinpoint a cause/significant stimulating factor. Frustrating. It feels like pressure underneath each of my nail beds which is localized there, and I feel like I have to press on them constantly. Somewhat sensitive and painful to touch, too. I tried therapeutic tape in the past on just my thumb/pinky fingers which gave minor relief, but I can't find anything that works. Does anybody else have this problem or have any suggestions on things to try? Thanks y'all

I was diagnosed with idiopathic SFN 3 years ago, and since then I have realized I've had symptoms since as early as 12 years old. I've been able to manage things pretty well until recently. About 2 months ago it seems my symptoms have gotten worse, and I now can not tell how much pressure I'm putting on a gas or break petal. I explained this to my neurologist at MUSC and was given a blanket statement and told to see a phycologist because its not SFN. I then questioned the Dr. why they would tell me three years ago that what I was describing was a symptom but now its not, and I was brushed off and told not to drive until something can be figured out. They offered an in person appointment in January but I'm not sure if I should continue with that Dr. Has anyone experienced numbness to the point of not being able to drive? Also does anyone have any suggestions for Neurologist's in S.C.? Thanks in advance

I get the same thing. For me it can last any where from minutes up to two weeks. as far as walking it feels like there is a piece of glass between my feet and the floor and I'm very unstable. walking in this state always ends in me falling so I've built up my arm muscles and keep different things for support around the house. I honestly have no idea why it happens. My Dr just told me its a part of SFN.