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Does anybody have experience with SANEXAS for neuropathy?

Neuropathy | Last Active: Jul 8 11:13pm | Replies (270)

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@bigron

I participated in a Sanexas trial a year ago. It was run by the neurology group I go to. Twice a week for 12 weeks. First, two bad car accidents, brain injury, and multiple spine, shoulder, elbow, knee and abdominal surgeries, pain, numbness, tingling, etc. Fused L3-S1 and C3-C7. Arachnoid adhesions present at L4-5. Progressive muscle spasms, pain, hot/cold, numbness with nearly no sensation in feet. So, bad, and no known successful treatment for arachnoiditis. Just narcotics and hope we don't kill ourselves. Went into trial not expecting any results but spasms stopped completely three weeks into treatment. End of 12 weeks had about 80% improvement in symptoms, but the most measurable result was going from four 10/325 oxycodone/day to two 5/325. Ended trial early January last year. Results held until June, so almost 6 months. Gradual decline since to about 60% of where I was when I started treatment. I'm told there were similar results for 60-70% of participants. Way better than anyone thought. Four patients at a time in the room where treatments were received (feet and calf only) so we were all able to talk freely. Reported results were consistent with conversations. (Just FYI, there was one fellow who had a poisoning situation from being a geologist in the mining industry. One foot amputated, the other half amputated. After about 3 weeks all the burning in his lower extremities stopped. After 10 weeks no more pain meds.) For some people this works, though I still don't really understand why. Extensive conversation with Medicare about the fact it is only approved with them and FDA under a physical therapy treatment code. So, cash only where it can be found and not one single physical therapy outfit in Colorado has even heard of it! Even the spinal cord injury experts at Craig Hospital in Denver. It obviously works for some people. Finding it is the problem. Considering moving to Florida so if Mayo is doing it I am interested. Hope this helps someone out there!

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Replies to "I participated in a Sanexas trial a year ago. It was run by the neurology group..."

I just saw online that they are doing SANEXAS Treatments at Colorado Springs Neuro Associates. I’m going to check about Medicare coverage. Maybe it’s possible here in Colorado! Bcool