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Restless Leg Syndrome

Sleep Health | Last Active: Apr 1, 2023 | Replies (268)

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@brett07281973

I was diagnosed with RLS years ago. Have seen 3 neurologists regarding this and the below problems. All neurologists said "undiagnosable neurological muscle disorder. No help.

Unfortunately I can not upload a video showing many spasms running through my calves all the time.
It is very annoying but I have found the right dosage of CBD to be extremely helpful. About 150mg taken before bed and same dose when I wake up after it has worn off. But my difficulties don't end there!!!

What I can not find a solution to, is a sensation that runs the length of my muscle fibers, from legs to around eyes. Diazapam helped for a while. I dread going to bed.

Any suggestions?

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Replies to "I was diagnosed with RLS years ago. Have seen 3 neurologists regarding this and the below..."

Welcome @brett07281973, I can't imagine how frustrating it is to have seen mulitple neurologist and still not have a treatment that provides some relief. I'm hoping other members with similar symptoms can share their experience with you and what has helped.

You mentioned that the sensation runs from your legs to around your eyes. Does it feel like pins and needles or electric shocks?

@brett7281973, @zalley, and others...Have you had your ferrous levels tested? It's a specific blood test but once the doctor saw my very low ferrous levels she add the Vitron-C supplement, over the counter. It helps a lot. I take 1 a.m., 1 p.m. and have more energy, it calms my legs tremendously. I still move them a lot at night, and even when sitting in my recliner I stretch and move my feet and legs, but not like previously and the discomforts are reduced.

This supplement and Requip for dopamine function have made a huge difference, improvement. I suggest if possible you ck into these areas that help me so much.

I also use CBD: THC tincture, 1 dropper, nightly and during the day I take CBD tincture as needed. I love what medical marijuana has done to help with RLS, insomnia, body pain, cramping, foot pain/cramps, etc.

I wrote a full book you can read above...I hope this helps you through this journey. It's so debilitating and frustrating
Blessings as you move forward. elizabeth