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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)
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@stanleykent

I hope the biopsy goes well and lab analysis will be in your favor..
On an SMZL general note, what I am wondering, what event(s), or test (s), triggers going from watch and wait to IV therapy? So would like to hear from anyone about their experiences, doctor discussions, lab results, etc I plan to have this discussion with the Hematologist, but would like to hear it from your perspective as well. Thanks

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Replies to "I hope the biopsy goes well and lab analysis will be in your favor.. On an..."
Colleen Young, Connect Director | @colleenyoung | Dec 6, 2021

Stan, I wanted to pick up on the question you asked "I am wondering, what event(s), or test (s), triggers going from watch and wait to IV therapy?"

I found this info:
- https://www.lymphoma.ca/wp-content/uploads/2021/08/LymphomaCanada_FactSheet_SMZL_Digital.pdf

See page 5
"The development of certain symptoms will suggest moving from a watch and wait approach to treatment.
Symptoms can include symptomatic or progressive splenomegaly, low blood cell counts or symptomatic
lymph node enlargement."

Like you, I'd be interested in hearing directly from the hematologist what they are monitoring and what they suggest you should watch for.

@reneemp, I see you're interested in the same thing. Do you have any symptoms or things you and your team monitor closely?

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