Connect
Peripheral nerve stimulators
This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.
Like
Helpful
HugInterested in more discussions like this? Go to the Neuropathy Support Group.
Connect
@sprinrosa64 I see you are interested in hearing from others who may have experience with a STEMWARE PNS. You will notice that I have moved your post into the existing PNS discussion, where I know you've already posted previously, to share your update and to better allow for others with experience to connect with you on this topic.
While we wait for others with experience to join, can I ask what your doctor shared with you about the timeline for results might look like?
-
Like -
Helpful -
Hug
2 ReactionsThanks, the doctor and stemwave company both figure that a week to 10 days should show if it will work for me. Its been 5 days and I see no difference in pain level
-
Like -
Helpful -
Hug
1 ReactionI look forward to hearing from others who have personal experiences with PNSs and how long it has taken to notice a reduction in pain.
@sprinrosa64 if you plan to see through the full ten days, will you please come back and share an update?
-
Like -
Helpful -
Hug
2 ReactionsAmanda I do plan on seeing it through even tho 6 days has shown no good results, after i see doctor by weeks end i will give up date 🙏it’s good update
-
Like -
Helpful -
Hug
1 Reaction@spinrosa64 I'm behind on this conversation. Would you mind telling me what brand is your device, and where on your body have they placed the stimulators?
It’s Stemwave PNS They had wanted to put it in my quad but were unable to so I have 2 of them below my knee. Today is 6th day and I am miserable. I would say how happy I am with the stemwave company they have come to my house twice to reprogram. We are giving it 2 more days before making a decision
i haven't seen any comments on this forum about the Sprint PNS, which is supposed to only require the implant for 60 days. Anyone have experience with that? Thanks.
I found no relief from Stemwave PNS. In fact I was glad trial was over
Going to have a stimwave for pelvic pain Dec 9 at emory in atlanta. Would like to know if it helped your pain and what was the name of the company that installed it
Wow , that’s quite a scary story , especially since I am probably going to trial one in a couple of months . Can you say which clinic you had it installed ..or even the city or state? It’s hard to get good outcome data , especially with quality of life as the outcome , not the pain score etc. Are there any good Nalu PNS stories out there that I can be encouraged by ?