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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@scottmatteo

My early Thanksgiving treat was finding out that I in fact have MF. Ugh. Interestingly, my spleen has decreased in size 18% and I have almost no blood numbers that are concerning. My platelets typically are over 450k, but almost always below 600k; elevated, but as some of you have mentioned this is not an alarming amount. However, the bone marrow biopsy did show elevated numbers in several measurements that are indicators of MF; the marrow itself had some but limited fibrosis. Dr. ordered the genetic testing on the bone marrow. That biopsy is a doozy! Might have let out a bit of "french" for the PA to hear... oops. Though there is not a grading level for MF, like in other cancers, my range is MF 0-1. It is early in the fight. Trying to wrap my mind around what this means for the near term as I have seen firsthand what the end of this can look like with my father. I am trying to focus on one day at a time.

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Replies to "My early Thanksgiving treat was finding out that I in fact have MF. Ugh. Interestingly, my..."

Hi Scott, while it's good to get a confirmed diagnosis, I'm sorry to hear that you have myelofibrosis. You might like to connect with others in this related discussion:

- Myelofibrosis https://connect.mayoclinic.org/discussion/myelofibrosis-24a025/

In the meantime, I whole-heartedly agree with the approach of focusing on one day at a time.