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Has anyone had monoclonal antibody treatment for COVID infection?
Post-COVID Recovery & COVID-19 | Last Active: Aug 16 11:19am | Replies (49)Comment receiving replies
@jrg200911, Dr. Ganesh wrote about medications that may help with long haul COVID symptoms, as well as listing those that have no evidence of being effective. You can see the list here:
- Post-COVID Syndrome and Medications https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/post-covid-syndrome-and-medications/
Fifteen months is a long time. Have you been or considered attending a post-COVID rehab program that uses multi-faceted approach to recovery?
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The timing of my COVID diagnostics (PCR and Antibody) all rendered NEGATIVE results to my presumed asymptomatic acute infection. It wasn’t until nearly 12 months post symptom onset I received a POSITIVE result to the T-Detect t-cell test. Until that time I was mostly dismissed by my doctors, especially since all tests run (inc. multiple labs, ECHO, Cardiac Stress Test, Pulmonary Function Test) have returned normal range results. Even the local Post COVID Clinic staff, seen before the T-Detect POSITIVE, would not render a long haul diagnosis. Very frustrating and confusing for me since, by all accounts I have read, I am a textbook case for Long Haul COVID…
Literally overnight, from 9/10/2020 to 9/11/2020, I went from trim, healthy and active with no comorbidities, taking no prescription medications, walking 3-7 miles per day, to suffering shortness of breath; dizziness; chest pain/pressure; brainfog; fatigue; heart racing/palpitations/rate spikes and dips (up to 200bpm/down to mid-40bpm) with little to no exertion - many times while sitting, with nausea, full body flushes preceding these “episodes”; headaches; ribcage soreness, visual changes… overnight. My entire bag-o-symptoms are not always present together nor to the worst degree, but have been always everyday in some combination to varying degrees of severity since onset 9/11/2020. With any level of activity I risk a “crash” involving increase of severity of any or all symptoms lasting sometimes for days.
In the sea of information and mis-information crashing in waves from the medias, I have tried to do my own research to find ways to improve. Not wanting to self-diagnose nor self-medicate, I have sought out legitimate sources and pathways to wellness. For lack of a better recommendation, both my GP and neurologist have referred me to the Mayo Clinic. I am in the process of applying for help through your COVID Activity Rehabilitation Program (CARP) being administered only through the Rochester, MN clinic location. I have yet to hear back to coordinate a plan going forward.
I have also found Dr. Noah Greenspan of New York’s Pulmonary Wellness Foundation who has been centering efforts on COVID LongHaul research and treatment. They have made available free online access to their 6-week “Pulmonary Boot Camp” video reactivity program which incorporates breathing exercises with a gradual increase in activity over the 6 week cycle. I’m just getting started with the program so have no reports yet for effectiveness. I am hopeful.
Pulmonary Wellness Foundation
Dr. Noah Greenspan, PT, DPT, CCS, EMT-B
10 East 38th St, 10th Floor
New York, NY 10016
212-921-0214
breathe@pulmonarywellness.org
http://www.pulmonarywellness.org
There are still so many unknowns as we all navigate through COVID. I’m willing to serve as a guinea pig of sorts if it ultimately leads to the health and well-being of others. In the meantime, I have run to my Lord, in whom is my trust, for refuge in troubled and joyous times. All is well with my soul.