Good morning Mike,
I’m sorry you had the varices experience already. I had mine just two months after I was diagnosed. First one at my office, second at home. Almost died and spent a total of three weeks in ICU. If you don’t have a blood pressure monitor, it would be a good investment. And, be aware of indications of a drop in blood pressure…which I guess you unfortunately discovered like I did. The second time mine burst, I turned white and almost fainted, but didn’t vomit blood like the first time.
The medications are life saving of course, but certainly have side effects like many medications. I think each of us has their own experience of adjusting to the meds. Working with my transplant team I’ve been able to reduce mine. I still have some effects, but these are also magnified by my autoimmune diseases.
There’s a great Mayo Connect blog for transplant recipients you might check out-
https://connect.mayoclinic.org/blog/transplant/
Here’s a couple that specifically discuss medications:
Transplant Medications: Everything You Need to Know https://connect.mayoclinic.org/newsfeed-post/transplant-medications-everything-you-need-to-know/
– Transplant Medications 101: Q&A https://connect.mayoclinic.org/newsfeed-post/transplant-medications-101-qa/
I wrote this one recently. For me, I have found that adjusting my diet works well to help reduce at least some of the impacts of the medications
- What's On My Plate - A Transplant Recipient Perspective
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/whats-on-my-plate-a-transplant-recipient-perspective/
My best, Athena
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Wow great info , yea when mine burst 2 time I threw up it the floor and knocked me out , my girl friend got me talking but by then 6 pints were gone , don't remember that much other than my head hurt from hitting the floor ! Your talking meds after the transplant right ? Is there anything to take before, my joints are absolutely a 10 on pain level , my back is messed up bad so that causes a whole set of other problems , I am so glad I found this site so helpful , I am making app today to go to SLU for different opinion. Wish Mayo was close ! The only thing I take now is a supplement and a few vitamins , I do take a pill for the muscle cramps , when they happen I know nothing around me the pain is so bad . Thank you so much for everything I sure appreciate! Thanks Mike