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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@johnbishop

Hello @stress, Welcome to Connect. I think you are right in that a lot of the neurological conditions are tied together. I don't have ME/CFS but do have small fiber PN, polymalgia rheumatica, and am trying to figure out if I'm in the catagory of those with metabolic syndrome which I think is related to my neuropathy. Here's some information that I think speaks to neuropathy and ME/CFS.

Small Fiber Neuropathy (SFN) Fibromyalgia and ME/CFS Resource Page: https://www.healthrising.org/small-fiber-neuropathy-resource-page-fibromyalgia/

There are a few other discussions that you might find interesting.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

Another connection I'm trying to understand which could possibly tie in with what you mentioned is the Metabolic Syndrome -- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/

Have you tried doing any research using PubMed (https://pubmed.ncbi.nlm.nih.gov/) or Google Scholar (https://scholar.google.com/)?

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Replies to "Hello @stress, Welcome to Connect. I think you are right in that a lot of the..."
Stretch | @stress | Nov 24, 2021

Hi John. I appreciate the great reference material. I’ll spend some time on each.

I have been a reluctant researcher on MECFS since ~1990, and joined several of the forums in that arena. My home office is stacked high with research journals and articles from several sources you referenced=/ Cort Johnson has done a terrific job in setting up phoenixrising.me forums and Health Rising.org/forums, the 2 largest and most actively involved.

When you say you’re studying the metabolic connection I’m wondering if you’re referring specifically to the digestive system involvement? If so, I am also interested in learning more about it and IBS. My ‘gut’ feeling (pun intended) is that there is some strong correlation. My gut problems recently began and it feels like it’s being affected by nerves
(related to the SFN)? I recently scanned a book ‘The Second Brain’ that espoused the stomach as having its own nervous system, in addition to producing over 90% of the body’s serotonin. Dr. Mike Gershon went on to claim that it, the stomach can therefore function independently of the brain! Pretty interesting stuff, seeding more interest… .

I look forward to learning of your related ideas and those of others. Many thanks.

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